By Matthew Wiggins
I’m Matthew Wiggins. I am a senior at Howard university who graduated in May 2024 with a Bachelor’s Degree in Strategic Communications and a minor in community development. In my last semester, I joined a class called CapComm Lab. This class is designed to provide students with firsthand experience in the field of communications through actively working for different clients who need communications-based work. In my case, I was tasked with assisting with the HU Empower Grant, which is a multipronged HIV awareness initiative by Howard University and a premiere national HIV nonprofit, HealthHIV.
By Matthew Wiggins
In clinics and counseling rooms across the United States, a battle is being fought. This is the battle against HIV stigma. For HIV positive Black women, this battle often determines their identities, mental and physical health, confidence, and how society perceives them.
I connected with Dr. Daniels, a psychologist who has dedicated much of her career to working with HIV positive Black women, to share her thoughts and opinions. After being informed of the HU Empower Grant, Dr. Daniels was invited to talk about what makes mental and physical HIV treatment most effective for Black women. These are words of wisdom that Dr. Daniels espoused, in the form of several quotes:
By: Matthew Wiggins
Angela is insightful, Black, and HIV positive.
Most importantly, she is trying to create a quality of life for herself, which most people take for granted. For Angela, that quality of life means long-term dating, marriage and the opportunity to create a family. Statistics show that many others are in the same situation. In fact, in May 2024, the Center for Disease Control noted infections Black and African-Americans outpaced their percentage in the U.S. population. Now, Angela is dating an individual who does not know that she is HIV positive, and she struggles to relay this to him, out of concern for how it would affect their relationship.
Sickle cell disease primarily affects about 100,000 Americans, and greater than 7 million people worldwide. Sickle cell disease (SCD) is a group of genetic disorders that affect red blood cells, causing them to become shaped like crescents or sickles. The sickle-shaped cells can travel through the bloodstream, getting stuck and cutting off blood flow, leading to intense pain and organ damage. Patients with SCD may experience chronic pain and have learned to manage frequent acute pain crises, leading some providers to mistakenly view them as drug seeking individuals. Thus provider bias often leads to inadequate pain treatment, with healthcare providers sometimes labeling patients as lazy, drug-seeking, or addicts.
Internalized Stigma & the Environment: Reflections from a Photo Narrative Project
Authors/Contributors: Internalized Stigma Interest Group
The Internalized Stigma Interest Group, of the Howard University annual International Conference on Stigma, is a network of people interested in promoting the awareness and reduction of internalized stigmatization of all types of oppression, especially related to stigmatized health conditions such as HIV, mental health challenges, sickle cell, and substance use challenges. We are activists and academics, people with lived experience, researchers, program workers, clinicians, students, and many other things – sometimes within a single individual! Everyone is welcome. We meet monthly over Zoom video-conference and have an email group. Both are used to exchange ideas and resources to support each other’s varied efforts.
Silent No More: The Perspective of Heterosexual Men Living with HIV
by Temitope Creppy, Senior, Howard University
“I was refused treatment because I refused to say I was homosexual.” These are the words of a 50-year-old African-American man diagnosed with HIV who was wrongly discriminated against and denied medical treatment due to stigma that persists in the healthcare environment. Healthcare professionals doubted his relationship with his wife, and people in his daily life still consider him homosexual because he lives with HIV. Unfortunately, across the country this is the reality of a majority of heterosexual men who live with HIV and experience stigma on a day-to-day basis. A Howard University workgroup named Positive EntreEmpowerment Heterosexual Men’s Workgroup and their associated Straight and Positive support group, support heterosexual men living with HIV and combating the stigma they face on a day-to-day basis. The workgroup consists of primarily men from around the country, largely from Cleveland, Ohio, Texas, and Florida ranging from those who have been living with HIV for several decades to recently diagnosed individuals. The group is inclusive of all racial and socioeconomic backgrounds.
Stigma is defined by Webster’s Dictionary as: a set of negative and unfair beliefs that a society or group of people have about something. In the more than four decades of the HIV Pandemic, the medical, scientific and communities most impacted by HIV have made incredible strides; moving us from what was once death sentence, to now a manageable chronic condition. That progress has been unequal across race, gender identity, sexual orientation, socioeconomic status and geographic location due to several factors but one of the primary culprits remains from the earliest days of the HIV pandemic, HIV-related stigma.
Since becoming public with my HIV status just this last fall, I find myself in a place of discovery. What does my life look like without keeping HIV a secret? How does the vulnerability uncovered become an asset to my gifts sharing in a world in much need of safe vulnerability? How do I extend to others while not lessening self care of less stimulation and information from social media? Aging with HIV- what is the best support for my own mental health?
I am grateful to Howard University, Who Can You tell? program, The Well Wisdom Project, Positive Women’s Network and more recently NAMI, “National Association for Mental Illness. These organizations provide inspiring Peer Support. Peer Support utilizes one’s life experiences as a gift to listen and share with others hopes, dreams, loss, disappointment and despair. Living with HIV for 20 years, I’ve done “therapy” many years of my life, and the exchange of Peer Support has been remarkable. Peer Support is an exchange between peers with similar lived experience. These “undesirable” experiences strengthen personal resilience to be an ally for others that are experiencing difficulty. I don’t have to have the exact experience of another to have common feelings of separateness, despair, not being enough, or without community. Peer Support holds space for another’s challenges, sees them as a worthy human being, and knows they have capacity to live life with joys and grief, and that there is hope in living a more joyful life.
Latinos United Against HIV Stigma is a focused workgroup with the mission of working to get rid of the stigma HIV carries. We strive to eradicate the stigma and discrimination those who don’t understand the disease have through education and involvement. We also work to reduce internalized stigma those with HIV may feel towards themselves. HIV is a human disease that can happen to anyone. Regardless of one’s diagnosis, everyone should be treated equitably without facing the threat of discrimination throughout society. It is important for the Latino community, specifically to come together and work on breaking down stereotypes present within our own families, neighborhoods, and workplaces. This group is open to anyone who’s willing to work with the Latino community to help actualize our goal of getting rid of HIV related stigma and stereotypes.
Message from the PostitiveEntrempowerment Heterosexual Men’s Workgroup
“If you are not at the Table you are on the Menu.” This terminology sounds familiar to many, but what happens when you, ”ARE NOT ON THE MENU.” Heterosexual men are not included in research, prevention, care, vaccine trails, biomedical prevention, when it relates to studies and clinical trials.
Therefore left out of these important strategies of Ending the HIV epidemic, the internal and external stigma permeates further. Many programs are linked to certain modes of transmission, and exclude others. The time has come for inclusion of the Denver Principles and MIPA as it relates to Heterosexual Men. We know there are special populations that will receive more attention, but we cannot negate the aspect of the need for equity. We are not asking for equality.
